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Wednesday, 13 July 2016

Aspergers and the imbalance of responsibility

Sometimes I wish I’d listened to those persistent (sometimes raging) doubts that had told me I was making a huge mistake by marrying Ethan.

He is so difficult to live with at times, totally dysfunctional to have a grown-up relationship with and almost impossible to bring up kids with. It leaves me wondering what was left to draw me to him. But I know really – it was the security, the stability and the flattery of being utterly the centre of his world. I was his special interest for as long as it took to get that ring on my finger.

It’s not that he’s stopped trying now, or turned into a tyrant. I know he does his best – most of the time. It’s just that his best is woefully inadequate and it’s so frustrating that his best never gets any better.

I’ve learnt that, when I’m working and he’s in charge of the kids, telling him over the phone what he needs to do doesn’t cut it. He’s forgotten what I’ve said by the time I get off the phone. So these days I text him the information. Today, in the midst of a really hectic schedule, I took the time to text him the information for this afternoon (‘I’ll bring dinner home, could you peel some potatoes, Sam needs to practice his spellings, Oliver’s going to his friend’s house so don’t worry about him and Ava needs picking up from church at 5pm’). I also emailed him Sam’s spellings to practice.

5pm as I leave work I phone Ethan. This is our conversation:

Me: “Could you put the oven on so it’s warming up?’

Ethan: “Oven? Why am I putting the oven…er (I can hear him scrabbling about in his conscious mind trying desperately to remember what he realises he’s supposed to know)…What’s going in the oven?”

Me (exasperated): “It doesn’t matter what’s going in the oven, just that you turn it on please so it’s warming up….(silence)…for the tea…that I’m bringing home.”

Ethan: Right…erm. OK…

Me: “What’s the problem? Just put it on. And then go and get Ava. You do know it’s after 5pm?”

Ethan: “OK (pause)…Where’s Ava?”

By the time I got home, I was already wound up. So the half-cooked pasta, chopped courgette and pepper and cold oven when I got home was enough to break me. I couldn’t even appreciate the fact that he’d made a start on dinner BECAUSE IT WAS THE WRONG DINNER. I HAD THE B*****Y DINNER IN MY BAG!

Me: “You did at least practice Sam’s spellings with him, did you?”

Ethan (pleased with himself) “Yes, I did.”

I felt slightly calmed. It was only when I was putting Sam to bed later that night and he told me that Ethan had grabbed his head to make him look at the spellings that my heart lurched.  Up to that time Ethan had just been annoying and unreliable. But the frequency with which he loses his temper with the kids over normal childhood behaviour (“he wasn’t doing what I said”) genuinely bothers me. As long as I don’t ask Ethan to do anything in the house or with the kids while he’s in charge, there’s no harm done. But there’s also no jobs done, meaning they’re all waiting for me when I get home. And who wants that?

Tuesday, 5 July 2016

Aspergers and (not) adapting to circumstances

Poor old Ethan.

Another appointment missed today because of his inability to adapt and respond to circumstances.

If I had an 08.30 appointment I’d bypass a sit-down breakfast and have a coffee, cereal bar and banana in the car on the way. I’d have a quick wash or a shower the night before (or I might just bypass the whole ritual that day - being clean’s over-rated) and I’d factor in issues like rush hour traffic to my journey time.

Not so Ethan.

He got up early – in plenty of time to get to his 08.30 appointment on time. But his morning consisted of the following routine that, it seems, is near on impossible for him to deviate from:

Have a leisurely sit-down breakfast of (warmed-up) fruit on granola (he can’t have the fruit straight from the fridge – too cold) whilst reading the news on his iphone. Normally takes about thirty minutes, followed by a lengthy toilet visit and a shower (at least twenty minutes).

Factor in a bit of faffing around and a bit more time wasted by the lure of the iphone and, despite having got up at 07.00, he didn’t set off until 8.15. He returned ten minutes later as he was struck in traffic and it dawned on him that there was no way he would get to his appointment on time.

I feel slightly guilty that I didn’t step in, chivvy him along, organise him a bit more but I have myself and three kids to get sorted in the morning. Organising a 43-year old man isn’t high on my natural list of priorities. So here he is at home, dressed for a work-out with a personal trainer yet watching TV. Irritated and still insisting that the journey should only have taken fifteen minutes (rush hour seems another anathema to him).

Maybe I should take the same approach he uses on our 11-year-old daughter and confiscate his iphone.